MPS is a genetic disease in children. It is a multi-systemic disorder with non-specific early symptoms. Diagnostic delays are common. P2P Syncro conducted an education program on the early diagnosis of the disease. It targeted pediatricians in primary care practice. 

Used Objective Metrics to Drive Program Design and Delivery

Claim data from the Centers for Medicare & Medicaid Services and commercial insurance were searched in a nationally representative database. HIPPA compliant information on pediatricians that linked to the diagnostic code of MPS was collected. The design and delivery of this program were driven by the objective real-world metrics.

Applied Innovative Methods to Enable Behavioral Change 

High-frequency early symptoms were identified and emphasized. Practical tips on diagnostic test selection and testing availabilities were provided. Roles and responsibilities of providers involved in the diagnostic journey were specified. Throughout the content development process, P2P Syncro worked with 3 patient advocacy organizations to gather input. 

Raised Awareness of MPS and Made Real Change in Practice

Recruitment of learners was conducted nationally. Claim data from the real-world showed that pediatricians who participated in the program subsequently made the diagnosis of MPS or became newly involved in the management of the disease. The results demonstrated that the awareness of a rare disease can be raised, practice behaviors can be changed, and diagnostic delay can be tackled.