Rare Disease Rare Attendance?
Rare Disease Rare Attendance?

At the beginning of 2021, as we harnessed the power of reflection, we pondered a question: Does rare disease education equate to rare attendance? Our answer is obviously no, but how?

"It's Me!"
"It Is Me!"

On March 7, 2020, we flew to Ohio for an educational event on hypophosphatasia, not realizing that it would be our last trip in 2020 due to COVID.

Bite-Sized Content
Bite-Sized Content

No seat was available when the P2P Syncro team entered a breakout session at the Alliance Annual Conference on January 9, 2020. 

Early Diagnosis
Early Diagnosis

We had a busy time at the National MPS Society Conference, talking to patients and experts in sunny Florida in December 2019.